Sunday, December 22, 2013

One tough infection

Tomorrow will be a week since dad was released from the hospital for this infection.  It's not been an easy week...for anyone. Dad still has the drain in his side to continue to clean out the abscess. He's on 2 antibiotics to kill the nasty bugs too. Problem is, dad has no appetite.  He's still very weak and has very little energy. Is this an effect of the drugs? The infection?  Or dare i it say....the cancer. I'm not sure.

Mom is the best caregiver.....ever. Anything he has a taste for, she makes. She flushes the drain, changes the dressing,  and stays on top of his meds.  She's there.

Prayer warriors,  please keep both my parents close to your hearts in prayer. Much love to all.......Jen

Wednesday, December 11, 2013

Would you like a dab of dijon mustard with that?

Um, no thank you....

Mom and I are sitting here at UMMC Baltimore, watching Dad sleep more peacefully than he was able to last night. It seems the pain is managed much better now. Thanks so much for all your prayers. 

So now to explain how we got to where we are right now....

After the ERCP last Monday, Dad's health was not improving. He lost his appetite. He was extraordinarily weak and tired. He pretty much stopped eating or drinking anything. He was beginnning to need my mother to help him get around, which....yeah, well....not a good time in the Snead house. On Monday, I made contact with Dr. Darwin and Dr. Jiang. They both responded and contacted Dad at home. The plan was put into motion to get Dad to UMMC asap. The issue, though, was that the hospital was full. There was no room at the inn, and there was another winter storm on the way. It was pretty paramount that we get into Baltimore Monday night, or he wasn't going to get there. I was fairly sure that even though Dad is a Christmas Eve baby, we weren't going to be able to secure ourselves a manger on the way either. His Drs were in close communication with us and worked whatever magic they did to get dad a bed, bypass the ER, and have him admitted directly Monday evening. 

A CT scan done 2am Tuesday showed that his liver is still infected with a monster, 5cm by 3cm abscess. A pyogenic liver abscess. Sounds lovely, doesn't it? No wonder he wasn't feeling better. The antibiotics that he'd been taking hadn't been able to take care of that part of his infection. 

Yesterday his team of docs eventually determined the plan of action to physically drain the abscess. Because of it's location, though, this consensus was not a decision at which all could easily arrive.  There was a lot of back and forth discussion as to whether or not this procedure could be done. It was a real possibility that the lung could have been punctured in the process, which, well...we won't go there. Yup, to stick a needle in his side to drain the pus out had to be timed precisely with his breathing. Dad's surgeon, Dr. Alexander, was confident it could be done. Others, however, were skeptical. (It appears, surgeons are a bit more aggressive in nature.) Sounds even lovelier, doesn't it? Evidently, these abscesses do not go away on antibiotics alone. So, if this abscess could not be drained, the septic infections would continue. 

Thankfully, the abscess was able to be reached without lung involvement, and boy did it drain! The infectious disease doc we met last night so proudly announced how much he loves pus, and based upon the volume of dijon mustard looking stuff coming out of Dad's side, there might be a prize involved. I mean, seriously. N-A-S-T-Y. No WONDER he felt so icky!  

So right now, Dad is resting fairly comfortably, and has slept most of the day. Percocet is doing her job beautifully, keeping his pain level reasonable. He's been able to eat a few meals and has his appetite back. Infectious disease docs are growing a garden with the pus to determine the bugs and the precise antibiotics to take care of the infection. The drain will stay in for quite a few days to make sure all of the infection is drained. Not sure of a discharge date and couldn't even begin to venture a guess. 

Again, I greatly appreciate all of your thoughts and prayers. God is good. We have made it this far in this cancer b/c of the loving support of our friends and family. Thanks everyone and much love to all.....Jen


Tuesday, December 10, 2013

Morphine....check....oxycodone...check....

...and those are just appetizers that haven't even come close to satiating the pain that Dad is in right now.

I promise when not on my phone that I will fill in the details.  For now, need my prayer warriors to pray for comfort and sleep for Dad. He is in excruciating pain after a procedure today. 

Much love to all who are doing those little (and big things) to help my parents and me while we are here.

Monday, December 9, 2013

Just Pray.....Please.

The Reader's Digest version of the last couple of weeks, which is also available in LARGE PRINT, if needed. 

Dad was released from Meritus 3 days before Thanksgiving. The infections were under control. However, the suspected root of said infections was the biliary tree, which still needed to be addressed to make sure no more infections occurred. Dad was given a 7 day script of Levaquin to make sure it completely knocked out the bacterial infections. 

We had a nice family gathering on Thanksgiving Day with Dad's side of the family and all of my siblings and nephews and niece. We ate a lot, watched a lot of football, and ate some more. 

Last Monday, I took Dad down to Baltimore to have his 4th ERCP done to take a look at the entire biliary tree. Dr. Darwin was able to put a stent inside the existing biliary stent. This is the 4th time Dad has had this procedure done, but for some reason, he had a tough time in recovery, and it took longer than usual to get the nausea under control and get him to a state where he could travel home. 

Well, he's not improved. Since then, his appetite has decreased significantly. Food tastes weird. He's very tired and very weak. I'm at a loss as to WHY. 

So please, just pray.